关键词: 结核后肺疾病, 病理状态,体征和症状, 疾病管理, 定性研究

Abstract:

Objective: To explore symptom cluster experiences and needs for symptom cluster management in patients with posttuberculosis lung disease (PTLD), so as to provide evidence for developing targeted symptom cluster management protocols. Methods: Using purposive sampling, 15 patients with PTLD who met the inclusion and exclusion criteria and attended the Tuberculosis Department of Kunming Third People’s Hospital between December 2025 and January 2026 were recruited. Semistructured interviews were conducted, and Colaizzi’s method was used to transcribe, categorize, and extract themes from the interview data. Results: Three core themes were identified: core symptom cluster experiences (intertwined respiratory and systemic physical symptoms, coexisting psychological-emotional and sleep problems, insufficient disease awareness and misconceptions about medical care); diseaserelated practical burden (significant dual family and financial pressure); and core patient management needs (demand for individualized treatment and medication guidance, diseaserelated knowledge acquisition, and professional rehabilitation guidance). Conclusion: Symptom experiences in PTLD patients are multidimensional and intertwined, with overlapping physical, psychological, and financial burdens. Patients’ core needs regarding treatment, knowledge, and rehabilitation remain unmet. Clinically, an integrated management model combining individualized treatment, systematic health education, professional rehabilitation, and multidimensional support should be established to address patients’ physical and psychological needs as well as family practical pressures, thereby enhancing continuity of care and improving quality of life.

Key words: Post-tuberculosis lung disease, Pathological conditions, signs and symptoms, Disease management, Qualitative research